This celebration of the engaged research of IDS TILDA will feature a screening of the feature film "Ageing with PrIDe – 10 Years of IDS TILDA" which follows Mei Lin Yap, a young person with Down syndrome, as she seeks to find out what it is like for those with an intellectual disability to grow older in Ireland. Mei Lin discusses the findings from the first ten years of the IDS TILDA study, whilst also highlighting ways in which people with an intellectual disability can take an active role in maintaining their own physical and mental health.
The screening will be followed by a discussion with Mei Lin Yap, Dr. Eric Lacey and Dr. Eimear McGlinchey, who will discuss the reality of dementia risk and prevention for people living with intellectual disabilities, the ground-breaking longitudinal research being carried out by the IDS-TILDA project, and how people with intellectual disabilities are contributing to and benefitting directly from this research.
Mei Lin Yap is a graduate of TCPID, Trinity College Dublin. Mei Lin works in HR at the CPL recruitment agency in Dublin. She has a passion for swimming and has represented Ireland at several international competitions. Mei Lin is a passionate advocate for the implementation of real and meaningful inclusion policies in the workplace.
Eric Lacey is a psychologist based in the Trinity Centre for Ageing and Intellectual Disability. His main interest is in identifying early cognitive biomarkers of dementia. As part of the IDS TILDA team Eric directed the ‘Ageing with PrIDe’ film and was the lead on the HRB funded Knowledge Exchange and Dissemination Scheme (KEDS).
Eimear McGlinchey is an Atlantic Fellow at the Global Brain Health Institute in TCD. Eimear works in the area of aging in people with an intellectual disability, with her primary focus on dementia in people with Down syndrome. Eimear is interested in the possibility of delaying the early symptoms of dementia through cognitive training and she was the lead on the BEADS study: Brain Exercise for Adults with Down Syndrome.
IDS-TILDA is a longitudinal study researching ageing in Ireland among people with an intellectual disability aged 40 and over. This study is the first of its kind in Europe, and the only study able to directly compare the ageing of people with intellectual disability with the general ageing population. The underpinning values of IDS-TILDA are inclusion, choice, empowerment, person centred, the promotion of people with intellectual disability, the promotion of best practice and to make a contribution to the lives of people with intellectual disability.
Research is considered "engaged" when it is developed in collaboration with patients, community members and partnering organisations rather than for or about them. Such public and patient involvement improves the relevancy of the research question, the quality of the approach, and the likelihood that what is discovered through the research can and will be used.