ONE IN NINETEEN: OUR MOST COMMONLY INHERITED DISEASE

Ireland has the highest proportion of people living with Cystic Fibrosis in the world. It is our most common genetically inherited disease and primarily affects the lungs and digestive system of over 1,300 patients in Ireland. Thankfully this once ‘childhood illness’ now counts over half of its population as over 18, but we are still some distance from having the world-class facilities needed.

New research into Cystic Fibrosis is helping us understand the challenges and providing some of the practical tools which are enabling patients to live longer and enjoy a higher quality of life. Hosted by broadcaster Ciara Kelly this talk will delve into new research and provide a platform to provoke conversation around this difficult disease.

LIVING WITH... is a flagship event series beginning in 2019 in partnership with ICON​ that aims to explore healthcare, the human experience and the future of disease treatment in a way that is engaging and drives the conversation. 

This discussion will be live-streamed through the Science Gallery Dublin Facebook page.

PANEL

Benat Broderick lives with Cystic Fibrosis (CF). Benat is an Ambassador & Advocate for the disease and he has always been eager to support others with the condition. He used his voice to educate the public and began speaking out on social media to discuss the illness and its challenges. As the conversation grew, he began to write articles and speak on radio and TV programmes to spread information and generate more awareness of the illness. Benat is strongly involved with the charity Cystic Fibrosis Ireland and helping to spread awareness to their national fundraising day, 65 Roses Day.

Nicola Hurley is an Exercise Physiology Ph.D. student based in the School of Health and Human Performance at DCU. Her research is jointly funded by Cystic Fibrosis Ireland and the Mater Foundation. Nicola is passionate about the ‘exercise is medicine’ phenomenon and aims to develop a home-based, technology-driven, CF-specific exercise intervention, with the patient at the heart of her research.

Padraic Fallon is the Professor of Translational Immunology in Trinity College. Fallon’s research is on translational immunology, bringing studies in the laboratory and also on patients with inflammatory diseases. Fallon was a Wellcome Trust Fellow in the University of Cambridge, is a Fellow of Trinity College Dublin, a member of the Royal Irish Academy and has been awarded a Doctor of Science from the University of Wales.  He is an opinion leader on the preclinical development of therapeutic strategies for inflammatory diseases.  Fallon has made a number of fundamental discoveries in immunology, reflected in over 20 years of publications in the leading international scientific journals.  In 2018 he was one of three scientists in Ireland that were ranked in the top 1% of immunologists in the world.

MODERATOR

Ciara Kelly Is a journalist and broadcaster on Irish radio. She is the presenter of Lunchtime Live on Newstalk. She also has a weekly column with the Irish Independent.

 

 

ICON is a global provider of drug development solutions and services to pharmaceutical, biotechnology, medical device and government, and public health organisations. The company specialises in the strategic development, management, and analysis of programs that support clinical development - from compound selection to Phase I-IV clinical studies. Founded and headquartered in Dublin since 1990, ICON currently, operates from 90 locations in 37 countries and has approximately 13,680 employees.

 

  • Date: 
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  • Where: Paccar Theatre
  • Price: FREE
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