HRB RED ALERT: SEEING/NOT SEEING – RARE FORMS OF BLINDNESS

The Health Research Board, as part of the HRB RED ALERT series, presents a public conversation on rare forms of sight loss. More than 224,000 people in Ireland are affected by rare, genetic, age-related and degenerative conditions that result in some form of blindness. What causes these conditions? What are the treatments and cures available? What kind of support is on offer for these people and their families? Listen to the stories of people whose lives were affected by sight loss –– the range of emotions that they experienced when diagnosed, society’s perception of blindness, and how they ultimately learned to embrace their condition. We will explore the latest innovative research being carried out to develop new treatments and therapies for these conditions as well as the support that is available through many charities, such as Fighting Blindness. Hosted by Newstalk's Jessica Kelly, join in the conversation with our panel of experts including Avril Daly, CEO of Retina International and Jane Farrar, Professor of Genetics at Trinity College Dublin, and John Delany, Senior Counselling Manager at Fighting Blindness.